The Antley brothers – Collin, Tyler and Jax – have a lot in common, including their love of the outdoors and spending time playing with cousins. But what really makes the boys relate to one another is their shared immunodeficiency. All three boys …
By Jean YaegerHer whole life, 19-year-old Ashlynn Malone has struggled with fatigue, outbreaks of severe pain, and hospitalizations due to sickle cell disease (SCD). That’s why Ashlynn jumped at the chance to join a clinical trial designed to …
By Jean YaegerWhen Jack Coffey hit about age 13, the middle of his chest started to look dented in.And if he slouched a certain way, his insides felt cramped. Sometimes while skateboarding or playing the trumpet, Jack noticed a sharp pain from his …
By Jean YaegerWhenever Luke Waggoner’s seizures start ramping up, his mom Ami can make a switch on her phone that changes the rhythm of electrical activity delivered to his brain.Inside Luke’s body is a network of tech devices and wires – running …